Medizin
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Browsing Medizin by Subject "300"
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- ItemBroad consent under the GDPR : an optimistic perspective on a bright future(Berlin ; Heidelberg [u.a.] : Springer Open, 2020) Hallinan, DaraBroad consent-the act of gaining one consent for multiple potential future research projects-sits at the core of much current genomic research practice. Since the 25th May 2018, the General Data Protection Regulation (GDPR) has applied as valid law concerning genomic research in the EU and now occupies a dominant position in the legal landscape. Yet, the position of the GDPR concerning broad consent has recently been cause for concern in the genomic research community. Whilst the text of the GDPR apparently supports the practice, recent jurisprudence contains language which is decidedly less positive. This article takes an in-depth look at the situation concerning broad consent under the GDPR and-despite the understandable concern flowing from recent jurisprudence-offers a positive outlook. This positive outlook is argued from three perspectives, each of which is significant in defining the current, and ongoing, legitimacy and utility of broad consent under the GDPR: The principled, the legal technical, and the practical. © 2020 The Author(s).
- ItemThe impact of the covid-19 pandemic on theworking conditions, employment, career development and well-being of refugee researchers(Basel : MDPI, 2021) Tzoraki, Ourania; Dimitrova, Svetlana; Barzakov, Marin; Yaseen, Saad; Gavalas, Vasilis; Harb, Hani; Haidari, Abas; Cahill, Brian P.; Ćulibrk, Alexandra; Nikolarea, Ekaterini; Andrianopulu, Eleni; Trajanovic, MiroslavThe ongoing ‘refugee crisis’ of the past years has led to the migration of refugee researchers (RRs) to European countries. Due to the COVID-19 pandemic, RRs often had to work from home and/or to continue their social, cultural and economic integration process under new conditions. An online survey carried out to explore the impact of the pandemic on the refugee researchers showed that RRs found it difficult to adapt their everyday working life to the ‘home’ setting. The majority have had neither a suitable work environment at home nor the appropriate technology. Although they stated that they are rather pleased with the measures taken by the public authorities, they expressed concern about their vulnerability due to their precarious contracts and the bureaucratic asylum procedures, as the pandemic has had a negative impact on these major issues. The majority of RRs working in academia seem not to have been affected at all as far as their income is concerned, while the majority of those employed in other sectors became unemployed during the pandemic (58%). Recommendations are provided to the public authorities and policy makers to assist RRs to mitigate the consequences of the pandemic on their life.